So things have been busy...but I should get back into my old "blogging" habit! :) Recent happenings include, but are not limited to the following:
I attempted the "CORE" Weight Watchers diet plan with my friend Jillian for a week...talk about torturous. I craved refined sugar like none other!I met my first "internet friend", Kristin, in personI made some delicious gluten free chocolate mint cookies and sent 62 of said cookies with Jeremy to work this past week for a "food day"....to rave reviews!I sampled (TWICE) the new GF Valencia orange cake from Starbucks...it's so good, it's honestly crave-worthy, as evidenced by my need
to get one on Thursday for lunch! HA! Not exactly a balanced lunch, but it was delicious!I discovered that Naturally Yours here in Bloomington carries fresh baked goods...including a delicious raspberry muffin that I gleefully sampledI am still asked quite regularly what gluten isI've made a number of gluten free meals here at home for a number of guests....I found out I do NOT have Celiac Disease.........yeah! Weird, huh?! Well, I have
"gluten intolerance" or "gluten sensitivity"...so really, nothing will change in the arena of my diet/current lifestyle. But the knowledge that I don't have an autoimmune disease is a good thing.Ok, so I had my follow-up appointment post genetic testing with Dr.
DeWeert, a GI here in town, on Tuesday.....and....I don't (yes DON'T) have
Celiac Disease....I don't have either of those 2 genes that predispose people to
Celiac Disease! 35% of the population has at least one of these genes in some form and I have NOTHING! When I first went in to see Dr.
DeWeert a few months ago he told me that he was pretty darn sure the genetic testing would come back showing that I had at least one of the genes. I definitely have gluten intolerance according to Dr.
DeWeert, though, and I am not arguing with that! Gluten is definitely key in whatever was screwing me up for so long...eliminate it and I am suddenly basically fine. Also, I can definitely tell if I had something that was "contaminated"...or at least I think I can. What if it is in my head?! Well, I don't think some of my....err...SYMPTOMS ;)...can be just "in my head". So, now I am in this weird non-
Celiac but still gluten-intolerant population. I did some reading about this recently, too, when it became apparent that maybe this was the category I fell into. People talked all tragically about how they feel "forgotten" since they don't have the "label" of
Celiac Disease but still have the same symptoms...just don't have the auto-immune disease component/etc. I don't plan on being that tragic about it ;).
Well, like I said though, nothing for me is going to change...I mean, it's obviously good to have this information and I may even try something glutenous (since I know it won't permanently damage me) at some point...but the thought freaks me out!!! I don't know if I can really bring myself to do it. I mean, sometimes it sounds really tempting (bread bowl from
Panera anyone?!)...Obviously I know what I was like
pre-diet-change and don't really want to go back to ANY of that suffering! Plus, there is a tiny percentage of
Celiac's who supposedly DON'T have the genes ;). I totally recognize it's a long shot...but I could be in that ;). HA! I hope people don't use this news as some kind of excuse to be less careful around me. It's still totally obvious that I get sick when I have gluten...boy oh boy. I have to admit, though, sometimes I do doubt myself...like, am I just some kind of hypochondriac who made all of this crap up!? Then I remind myself....um, no...not likely! This isn't exactly FUN. It's been incredibly hard and it's definitely not about getting attention or anything like that. I don't even LIKE being the center of attention/having something "different" about me! Not to mention the fact that, well, there's no way that practically pooping my pants after eating gluten can be just IN MY HEAD! HA!
I just read on
celiac.com :
In some rare individuals, especially some men, a negative genetic test may not exclude the possibility of celiac disease anymore than a negative blood test. Men more commonly have negative genetic tests and blood tests, especially older men with long-standing severe disease.Well...I'm clearly not a man. And definitely not an OLD man ;). But who knows!!!
Well, for not I am content....I don't have
Celiac Disease, but my body still hates gluten. That's fine...with all of the support I've been getting, I've been doing pretty darn well. I am finding things to eat that I actually enjoy and I am not suffering by any means! So, bring on the rice pasta and the
Chebe bread! :)